Monday, May 4, 2009

Mayo-Monday

Day #2 in Minnesota:

Today was very busy, but I met all of my appointments and met Dr. Engel. He is a very nice older man and was easy to talk to. He didn't have all the answers and said that the genetic testing that Mom, Dad, Sara, and I sent in would not be tested for 3 months to a year. Wow-not what I expected or wanted to hear. We got a letter in the mail that said that they had determined our families neuromuscular disease, but apparently not cause he said he needed our blood and I told him it was already done. The people here at the Mayo are very friendly and nice. They all comment on how we came at the right time of the year because the weather is nice.

So I had to explain my life story once again for the 6th time since January to the 6th Neurologist and did the same tests (lift your leg, squeeze my hand, etc.) for the 6th time. I should be a Neurologist cause I know the routine now. He said he thinks it is Congenital Myasthenic Syndrome (CMS) cause I had problems when I was young, and did not respond to treatments. We asked him several questions about why this or why that, and he really had no answer. Said that all myasthenic patients are different and that it just depended on the person and the severity of the case. I asked him why in the last 2 weeks I got better and he had no answer. So, tomorrow I'm going to preach to him and just tell him that God healed me and that's why he does not have the answers.

Tomorrow I have another EMG (3rd time to do one) where they shock your muscles several times and then stick a needle in one of your muscles and test it. Then we are going to meet Dr. Engel at 3:30 again and he is going to give us the results of the EMG and start some medicine-an Albuterol pill. Interesting I know, but I read that it is a treatment for CMS. Then he wants me to stay in town for 24 hours and see him again Wed. to make sure I have no side effects from it and to see how I'm doing.

The only flight out on Wed. is at 5:55pm, so I'm not sure we will not make it, but we will try. If not our flight is set for Thurs. at 7:00am. So we shall see.




We are waiting... oh and eating....
View from the Mayo Clinic...

Driving from Minneapolis to Rochester.. Lots of barns, land, and farms...


Signs to Mayo...



Mayo Clinic...



Dr. Engel on the wall at the Mayo...





Dr. Engel's research of CMS on the wall...








4 comments:

Ashley said...

Preach it girl! I hope tomorrow is a good day with some answers!

Anonymous said...

What a wonderful Christian attitude.
Romans 8:28-31
28 "We know that all things work together for good to them that love God"
31. "If God be for us who can be against us?"
Just keep on spreading the word..
The Lords hands were nailed to the cross and He put the gospel in our hands. You are sure doing your part.
LV U
Memaw

Winter Wonderland said...

I hope you get everything answered tomorrow...you didn't travel all that way for another dr to have know the answers. Still praying!!

Christi Glaser said...

This brought back so many memories for me. I had my thymectomy at the Mayo Clinic. All of those pictures took me back. My dr. was Dr. Cassivi. Good luck with your treatment. I, too, had symptoms as a child up through adulthood, but the symptoms never caused real concern until I got pregnant with my third child. I had generalized MG, not congenital.