Monday, February 16, 2009

MG-My Story

Here is a timeline of my feelings/diagnosis:

September-
Just felt tired and weak, thought it was just the pregnancy

October-
Went to a football game and had difficutly climbing up the stairs, thought it was weight added by the baby.

November-
-Began having trouble putting my clothes on. George had to help me.
- Had Thanksgiving dinner at my house, so worn out, couldn't hardly make anything except deviled eggs and I was exhausted.

December-
-Went to mavericks game, couldn't go get my food and carry it and walk down the stairs
- Could barely climb up a step at grocery store or get up off the couch
-Had trouble swallowing pills
-Could barely walk into the school building from my car, I felt like I would fall
-Had trouble raising my arms up to wash hair in the shower

January-
-Talked with Dr. Ford about the weakness, he said MG, but sent me to a neurologist, said this was not normal pregnancy symptoms
- Did not go back to work, felt as if I couldn't walk into building by myself and very anxious about being around everyone
-Jan. 2nd-Saw 1st Neurologist -QUACK... said he thought it was Muscular Dystrophy (not going back to him)
-Jan 10th-Saw high risk baby doctor, Haley looked good and no problems as far as the pregnancy was concerned discussed delivery with having MG (still no diagnosis, but Dr. Ford had said it first, and after reading I knew it was also just by how I felt and everything I read)
-Jan. 8th-Saw 2nd Neurologist-Said he thought it was MG, didn't want to do any tests until March 10th after baby was born
-He did though recommend and talk with Ob doctor to get my care changed to Fort Worth with Dr. Hardick (BEST MOVE). Although Dr. Ford is good, he is not into high risk and Cleburne definitely is not the place to be (once again, BEST DECISION)
-Jan. 30th Went to see 3rd Neurologist Dr. Nations. She worked me in and spent 3-4 hours with me doing EMG and muscle testing and diagnosed the me with MG. Started me on Mestinon medication. The only reason I got into see her was because of Mindy Shaw and the MDA association. Dr. Nations is a professor and specialist in MG and sees rare cases like mine.
-Decided to induce Feb. 10th at Baylor All Saints Hospital with Dr. Hardick

No comments: