Monday, February 16, 2009

IVIG Treatment

Treatments #1-Feb. 13th-Went well, no improvements noticed.

Treatment #2 Feb. 14th-Had a few setbacks, didn’t finish treatment until Sunday night. Set me back a day in treatment time. Improvements: Could wash hands by myself, get my own soap, towel, and lift arms to wash. I could not lift my arms prior to this.

Treatment #3 Monday Feb 16th Increased rate to 55ml/hr. After the initial nurse freaking out in my room about how he had never done this and was a little nervous, we got going and the treatment went well. Improvements: Took a shower, could lift arm to wash hair. Swallowing is better. Ate 3 cups of mashed potatoes with butter and gravy and 3 shakes.
This is the first time in my life I’m asking for whole milk, butter, real sprite, blue bell ice cream. There are so many muscles in the throat that have to move when you talk/eat. I have to limit chewing to not tire out and get as many calories as possible in a small amount of food. I tell everyone I’m a dietitian and that stops most of the hassle as far as the eating part is concerned. I know what to do, just never thought I’d have to do it on myself and be drinking thickened liquids. I am drinking more sprite and getting off the thicker liquids.

Treatment #4: Tuesday Feb 17th. –Currently in progress. More to come.

2 comments:

Jerry Atson said...

I had myasthenia gravis since 2015. I got medically discharged out of the Army, a job I loved well. My heart had 5 myasthenic crises, 3 being severe enough to be ventilated or require CPAP (continuous positive airway pressure) helmet. I have had countless plasma exchanges as my veins are bad. I also needed Hickman lines inserted. I have been on azathioprine, mycophenolate (CellCept), methotrexate and none have worked. I'm currently done with my herbal remedy I purchase from totalcureherbsfoundation .com which has totally cured my condition with a surprise after almost four months of their usage, I was discouraged and never thought I would be myasthenia gravis (MG) free ,to me the best to get rid of this condition is totalcureherbsfoundation com treatment because all medications I used never worked include mycophenolate (CellCept)

Jake Van said...

I am a retired navy veteran and was diagnosed with myasthenia gravis in September 2020. After a bout of left ear infection and TMD (Temporomandibular disorder), symptoms persisting were eyelid drooping, slurred speech, drooling and overall muscle weakness in the left hand grip, increased fatigue and unsteady walking. I'm now taking www. madibaherbalcenter . com herbal cure (3 months) and I have been receiving a great improvement since I started the remedy, I find joy in being able to go out by myself and catch a movie. “It’s been wonderful, and it’s been life-changing.